Anyone interested or impacted by caregiving for a person suffering from age-related dementia might find this blog entry and video short of interest: My Name is Lisa.
Two years ago my mom was diagnosed with Alzheimer’s and our family was nearly turned upside-down overnight. It’s just that kind of disease; nobody close to it walks away unscathed. Because of its vicious, capricious nature, sometimes we forget that Alzheimer’s can also bring out some facets of a personality that are unexpectedly lovely.
With my mom, it’s her laugh.
Always very serious and austere, mom was never much for displays of affection or laughter. Until now, that is. As her granddaughter noted (and I’m paraphrasing), “Grandma is sometimes more fun now that she’s gone crazy.”
It’s true. Sad, but true. Along with language that could make sailors blush, the first vestiges of this unspeakable disease that we watched claim her mother over the years has uncovered in my mother, temporarily anyway, a light, bubbly, childlike side that isn’t really unpleasant — except when you realize where it’s leading.
It’s hard to find anything good to say about an illness that eventually and completely robs a person of themselves. Maybe it’s not even decorous to attempt it. Still, I have to agree with my daughter – seeing this side of my mother come out is a tiny ray of sunlight in an otherwise darkened cave. Her vulnerability and softness also makes her – and our – new reality somehow even harder to take, at the same time.
The short film captures just a bit of the sorrow, chaos and, yes, unexpected positive moments – few and far between though they are – that come with caring for an Alzheimer’s patient.
According to the film’s written synopsis, approximately 250,000 children between the ages of 8-18 are caring for a victim of Alzheimer’s. Here’s hoping they find moments of unplanned happiness amid the all too frequent horror.